Blogs

PTEN patient stories – Sarah

Sarah shares her experience When and how did you first get diagnosed?  I was first diagnosed because of my niece. When ...
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First International PTEN Symposium

Our Trustee of Fundraising Kelly tells us about her recent trip to the US to represent PTENUKI at the PTEN ...
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PTEN patient stories – Ross

Ross is in his 20's and shares his experience. When and how did you first get diagnosed? Signs where there when ...
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PTEN patient stories – Derek

Derek is in his 50's and shares his experience 1. When and how did you get diagnosed? In late summer ...
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PTENUKI Patient Day Nov 2017

The third national PTEN / PHTS patient day held on 11th November 2017 was attended by over 80 people. Once ...
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PTEN patient stories – Ellie

Ellie is in her 20's and shares her experience. When and how did you first get diagnosed?  They found out ...
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PTEN patient stories – Mike

Mike is in his 60's and shares his experience. When and how did you first get diagnosed?  Approx 2013 What symptoms ...
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