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Agenda and travel details for the Patient Day on Sat 11th in London now available. Start time 10am. Looking forward to seeing everyone…!
Please have a look around our new website, explore all the pages of information and click below to let us know your thoughts…
PTEN Hamartoma Tumour Syndrome (PHTS, often shortened to PTEN) is a rare genetic condition. It is thought to affect around 200-300 people in the UK, ….
Want to get involved and see what’s it all about or just have someone to talk to if you have been affected by any of the topics covered here….
Ellie is in her 20’s and shares her experience. When and how did you first[...]
Mike is in his 60’s and shares his experience. When and how did you first[...]
After the success of our Patient Day last year in London, we are organising another[...]
We’re delighted to have launched our new website for patients and families affected by PTEN[...]
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PTEN UK & Ireland Patient Group
4 days ago
PTEN UK & Ireland Patient Group shared PTEN Hamartoma Tumor Syndrome Foundation's post. ... See MoreSee Less
Important DSC/PTEN Trial webinar information. This Thursday, February 22, 2018! #PTEN #PHTS
Pten ItaliaPTEN WorldCOWDENsyndroomBeating Cowden'sPTEN UK & Ireland Patient Group Please share with your...
1 week ago
Good luck Sinéad Catherine Daly-Arnett on your Easter Walk 25km! To sponsor her see the link below! ... See MoreSee Less
Raising Money and Awareness for PTEN UK & Ireland for PTENUKI on MyDonate
My name is Sinead Daly-Arnett. I am the wife of Dan, a mother to Jamie and Leo and also a full time carer for Leo. Leo was diagnosed with having...
PTEN UK & Ireland Patient Group updated their profile picture. ... See MoreSee Less
Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.
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