PTEN Power hour
This month we will be speaking with Paul Elvin (PTEN Research) and Priyanka Tibarewal (UCL and PTEN-UKI), about drug repurposing for PHTS.
See more about our March Power Hour…
PATIENT
REGISTRY
A new Patient Registry has been created by Cambridge University and the PTEN Research Foundation. Read more about how it will help the lives of PTEN patients and sign up here…
Sign UpBUDDy Scheme
& LOCAL Meet UPS
We’ve just launched our new buddy support scheme and local meet-up groups, click below to find out more…
Buddy Scheme Meet UpsPTENUKI VIDEO
Find out more about PTENUKI and what we’re doing to help people affected by PHTS.
Watch