Cover for PTEN UK & Ireland Patient Group
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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

🎉 Congratulations to Wendy Cooper! 🎉We are thrilled to announce that Wendy Cooper is the lucky winner of our £30 Amazon voucher prize draw! 🏆 Wendy participated in our recent survey, helping us shape the future direction of PTENUKI for 2025.A huge thank you to Wendy and everyone who took the time to share their valuable insights. Your feedback is instrumental in guiding our efforts to make a positive impact. 🌟#PTENUKI ... See MoreSee Less
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Last Chance to Sign Up! ⏳🎨🚨 Deadline alert! You have until Wednesday, 12th February to sign up for PTENUKI’s virtual Brush Party!🖌️ What’s happening? A fun, relaxing online painting event on Saturday, 22nd February, 3pm – open to all ages! Everyone who registers gets an art pack with everything they need.✨ This is our first wellbeing event, so don’t miss out! Let’s get creative and connect ahead of #RareDiseaseDay2025.🔗 Sign up now: buff.ly/4aMgrsB#PTENUKI #RareDiseaseDay #WellbeingEvent #BrushParty ... See MoreSee Less
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Get Creative with PTENUKI! 🖌️Looking for a fun and relaxing way to connect with the PTENUKI community? Join our virtual Brush Party – a special wellbeing event ahead of #RareDiseaseDay2025! 🎨💜🎟 Sign up by Wednesday, 12th February to receive your free art kit! The event takes place Saturday, 22nd February 3pm – all ages welcome!Let’s paint, chat, and support each other in a new and creative way. 🖼️✨🔗 Sign up here: buff.ly/4aMgrsB#PTENUKI #RareDiseaseDay #BrushParty #WellbeingMatters ... See MoreSee Less
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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.