Hear more about the work of @PTENUKI and the difference we make to patients and families in this video filmed at our our amazing #patientday last year: youtu.be/sbPgGp3Ydnc #PTEN #Cowdens #PHTS #PTENUKIPTENUKI is a patient group which aims to help and support patients, carers and families affected by the PTEN / PHTS rare genetic condition
This #RareDiseaseDay we look back about what #PTENTUKI have achieved as a charity working in #PTEN #Cowdens #PHTS read more here: buff.ly/2H7ci75
For more about the charity contact: info@ptentuki.org
ptenuki.org
PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN. Now with a network of over 200 members, a significant proportion of...Charlie shared his patient journey with us at last year's patient day in London and you can read it here: ptenuki.org/pten-patient-story-charlie/
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Thank you Charlie for helping others by sharing your story with us!
Pten patient story – Charlie | PTEN UK & Ireland Patient Group
ptenuki.org
Charlie told his story at the 2018 PTEN Patient Day. Charlie was diagnosed in 1992, at the time he had bad asthma. Charlie's parents sent him to a Special Needs school. Charlie had multiple hospital v...
