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Pten is thought to affect around 200-300 people in the UK so it is a rare genetic condition. We have come together as a family to support one another, even having patient days where we can connect face to face. With it being rare disease day, we are raising awareness to say we may be small by we care.Rare Disease DayGenetic Alliance UK - Member OrganisationsPTEN Hamartoma Tumor Syndrome FoundationPten ItaliaRare Disease UK ... See MoreSee Less
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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.