PTEN UK & Ireland Patient Group

About PHTS

PTEN Hamartoma Tumour Syndrome (PHTS, often shortened to PTEN) is a rare genetic condition. It is thought to affect around 200-300 people in the UK, ….

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Want to get involved and see what’s it all about or just have someone to talk to if you have been affected by any of the topics covered here….

Latest news

PTENUKI Newsletter – Summer 2019

On behalf of the charity I am delighted to attach to our Summer Newsletter with[...]

02
Sep

Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients[...]

27
Feb

PTENUKI Newsletter – Summer 2018

On behalf of the charity I am delighted to attach to our Summer Newsletter with[...]

07
Aug

Website Launch – Nov 2017

We’re delighted to have launched our new website for patients and families affected by PTEN[...]

09
Aug

PTEN UK & Ireland Patient Group

10 hours ago

Please help us to win a £1000 donation by nominating our charity in the Movement for Good Awards. Just click on the link below. This donation would go along way to helping us support our community and help us run our next annual conference. Thank you.www.movementforgood.com/12days/index.php?cn=1110661&ct=disability ... See MoreSee Less

Movement for good - Nominate a charity to receive £1000 from Ecclesiastical

www.movementforgood.com

12 days of giving will provide vital support to organisations right across the UK, Ireland, Channel Islands and the Isle of Mann

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PTEN UK & Ireland Patient Group

10 hours ago

Please help us to win £1000 by nominating us at the Movement for Good Awards. Starting on the 6th December 10 charities a day will win £1k! Please click on the link below. £1k would go a long way to helping us support our community and will help us run our next PTEN Conference in 2022. Thank you.www.movementforgood.com/12days/index.php?cn=1110661&ct=disability ... See MoreSee Less

Movement for good - Nominate a charity to receive £1000 from Ecclesiastical

www.movementforgood.com

12 days of giving will provide vital support to organisations right across the UK, Ireland, Channel Islands and the Isle of Mann

View on Facebook

PTEN UK & Ireland Patient Group

2 weeks ago

Please clap for Claire and help support her by sharing her link below. She is doing an amazing job of raising money for our charity by completing 100 squats a day and not eating chocolate for the whole of November! Well done Claire. Thank you so much for your hard efforts! Our PTEN community is very grateful! www.justgiving.com/fundraising/claire-keeley ... See MoreSee Less

Claire's Squats and chocolate!

www.justgiving.com

Help Claire Keeley raise money to support PTEN UK and Ireland Patient Group

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About PHTS

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Latest news

PTENUKI Newsletter – Summer 2019

Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI Newsletter – Summer 2018

Website Launch – Nov 2017