join in the latest research
This research seeks to test online questionnaires and measure of thinking skills relevant
to people with PTEN Syndrome…
A new Patient Registry has been created by Cambridge University and the PTEN Research Foundation. Read more about how it will help the lives of PTEN patients and sign up here…Sign Up
& LOCAL Meet UPS
We’ve just launched our new buddy support scheme and local meet-up groups, click below to find out more…Buddy Scheme Meet Ups
WHAT IS THE PTENUKI Patient group?
Find out more about PTENUKI and what we’re doing to help people affected by PHTS.Watch