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A new Patient Registry has been created by Cambridge University and the PTEN Research Foundation. Read more about how it will help the lives of PTEN patients and sign up here…
We are proud to announce the launch of our Covid Kindness Grant!!
We’ve just launched our new buddy support scheme and local meet-up groups, click below to find out more…
Find out more about PTENUKI and what we’re doing to help people affected by PHTS.
PTEN Hamartoma Tumour Syndrome (PHTS, often shortened to PTEN) is a rare genetic condition. It is thought to affect around 200-300 people in the UK, ….
Want to get involved and see what’s it all about or just have someone to talk to if you have been affected by any of the topics covered here….
On behalf of the charity I am delighted to attach to our Summer Newsletter with[...]
PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients[...]
We’re delighted to have launched our new website for patients and families affected by PTEN[...]
9 hours ago
smile.amazon.co.uk: You shop. Amazon gives.
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Movement for good - Nominate a charity to receive £1000 from Ecclesiastical
Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.