Cover for PTEN UK & Ireland Patient Group
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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

📢 Hello PTEN Community!📢 It's nearly time for this month's PTEN Power Hour! ⭐ PTEN Power Hour: Community Catch Up 📅 20th March 🕖 19.00 Why join us this month? 💥 Your chance to meet as a community 💥 Swap stories 💥 Support each other on the PTEN pathway 👉 Whether you're a new member or an existing this month's Power Hour is perfect for you 🎫 Get your tickets here - buff.ly/3v1o26u ... See MoreSee Less
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📢 Hello PTEN Community!📢 It's nearly time for this month's PTEN Power Hour! ⭐ PTEN Power Hour: Community Catch Up 📅 20th March 🕖 19.00 Why join us this month? 💥 Your chance to meet as a community 💥 Swap stories 💥 Support each other on the PTEN pathway 👉 Whether you're a new member or an existing this month's Power Hour is perfect for you 🎫 Get your tickets here - buff.ly/3v1o26u ... See MoreSee Less
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📢 Hello PTEN Community!📢 It's nearly time for this month's PTEN Power Hour! ⭐ PTEN Power Hour: Community Catch Up📅 20th March🕖 19.00Why join us this month?💥 Your chance to meet as a community 💥 Swap stories💥 Support each other on the PTEN pathway👉 Whether you're a new member or an existing this month's Power Hour is perfect for you 🎫 Get your tickets here - buff.ly/3v1o26u ... See MoreSee Less
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📢 Exciting Opportunity! 📢 👉 The Rare Diseases Advisory Group (RDAG) are looking for a new chair. 👉 If this is a role that suits you head to buff.ly/4a99gcr to find out more! ... See MoreSee Less
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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.