Care & Support

Please take a look at our Screening Guidelines page for the latest information.
Category: Care & Support

Newly Diagnosed

If you are newly diagnosed with PHTS, we’d recommend checking out the following resources on our website –

– the New to PHTS page:,

– the On Diagnosis page:, and

– the PTEN Overview Video by Dr Katherine Lachlan:

We would also recommend joining our private Facebook group which is where most people chat and support each other:

Category: Newly Diagnosed

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