News & Events

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PTENUKI Cost of living grant appeal now open!

CALLING ALL FAMILIES TOUCHED BY PTEN IN THE UK AND IRELAND! This is for you! The PTEN UK and Ireland ...

PTEN UK & Ireland Patient Day summary 2023

On Saturday 24th June 2023 we held our 6th PTEN Patient Day in Oxfordshire, kindly hosted by the HealthScience communications consultancy Oxford ...

One month to go until the next PTEN UK and Ireland Patient Day!

We are very excited that our 2023 PTEN Patient and family Day is just around the corner. Everyone is welcome! ...

PTEN UKI runs the London Landmarks Half marathon!

We want to say a HUGE thank you to our six runners who took part in the London Landmarks half ...

PTEN Wellbeing Clinics

EXCITING NEWS!!! In the PTEN community we all understand the impact that living with a PTEN mutation can sometimes have, ...