News & Events

Patient Day 2019 – Registrations Open

Registration is now open for the next PTENUKI Patient Day. All welcome, register now!! Saturday 16th November 2019 from 10am to ...
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South West Support Group

The South West region support group is proud to announce it's first "meet and greet/ planning" session. When? SATURDAY 7th ...
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Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN ...
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PTENUKI Patient Day – Nov 2018

The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once ...
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PTENUKI Newsletter – Summer 2018

On behalf of the charity I am delighted to attach to our Summer Newsletter with details of all our updates ...
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