News & Events

PTENUKI Newsletter – Summer 2019

On behalf of the charity I am delighted to attach to our Summer Newsletter with details of all our updates ...
Read More

Patient Day 2019 – Registrations Open

Registration is now open for the next PTENUKI Patient Day. All welcome, register now!! Saturday 16th November 2019 from 10am to ...
Read More

South West Support Group

The South West region support group is proud to announce it's first "meet and greet/ planning" session. When? SATURDAY 7th ...
Read More

Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN ...
Read More

PTENUKI Patient Day – Nov 2018

The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once ...
Read More