News & Events

Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN ...
Read More

PTENUKI Patient Day – Nov 2018

The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once ...
Read More

PTENUKI Patient Day 2018

Yes folks, we are organising another patient day for the UK and Ireland! All welcome, register now!! Saturday 24th November 2018 ...
Read More

PTENUKI Newsletter – Summer 2018

On behalf of the charity I am delighted to attach to our Summer Newsletter with details of all our updates ...
Read More

PTENUKI Patient Day Nov 2017

The third national PTEN / PHTS patient day held on 11th November 2017 was attended by over 80 people. Once ...
Read More