PTEN Power hour
An opportunity to speak to the medical professionals about the PTEN Patient Registry
See more about our February Power Hour…
PATIENT
REGISTRY
A new Patient Registry has been created by Cambridge University and the PTEN Research Foundation. Read more about how it will help the lives of PTEN patients and sign up here…
Sign UpBUDDy Scheme
& LOCAL Meet UPS
We’ve just launched our new buddy support scheme and local meet-up groups, click below to find out more…
Buddy Scheme Meet UpsPTENUKI VIDEO
Find out more about PTENUKI and what we’re doing to help people affected by PHTS.
Watch