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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

PTEN UK & Ireland Patient Group

3 days ago

PTEN UK & Ireland Patient Group
🌟 Learn More About PTENUKI Patient Day! 🌟Ever wondered what PTENUKI Patient Day is all about? 🤔 Watch this video to get a glimpse into this incredible event where patients, families, and experts come together to share, learn, and support one another. 💙 buff.ly/4hcBnvDWhether you're living with PTEN, supporting someone who is, or just want to learn more about this amazing community, Patient Day 2025 is the place to be!Find out more about this year's Patient day and sign up now: buff.ly/4h9AqDM ... See MoreSee Less

What is the PTEN UKI Patient Day all about?

buff.ly

A short video showcasing the 2022 PTEN UKI patient day in Oxford.

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PTEN UK & Ireland Patient Group

5 days ago

PTEN UK & Ireland Patient Group
🎉 Have Your Say & Win a £30 Amazon Voucher! 🎉At PTENUKI, we're committed to supporting our community in the best way possible. As we plan for 2025, we want to ensure we’re focusing on what you truly need.💡 Here’s how you can help:Take a few minutes to complete our survey 👉 buff.ly/3BR5MzR.📢 Why is your voice important?Your feedback helps shape the direction of our charity and ensures we’re addressing the most pressing needs of the PTEN community.🎁 BONUS: By completing the survey, you’ll be entered into a prize draw to win a £30 Amazon voucher!🕒 Don’t wait – your input matters, deadline is Friday 31 January.Click here to start 👉 buff.ly/3BR5MzR. ... See MoreSee Less

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PTEN UK & Ireland Patient Group

1 week ago

PTEN UK & Ireland Patient Group
💙 2024 Fundraising Highlights! 💙🎉 In 2024, £7,306 was raised by 10 incredible fundraisers!💪 The average amount raised per person was £731.🌟 Our top fundraiser brought in an amazing £2,437!Want to be part of our 2025 success story? Check out our Fundraising Toolkit for inspiration and resources: buff.ly/40u1JTSTogether, we can achieve even more this year! 🙌 ... See MoreSee Less
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PTEN UK & Ireland Patient Group

2 weeks ago

PTEN UK & Ireland Patient Group
🏃‍♂️🏃‍♀️ New Year, New Challenge! Take part in the PTENUKI Run for Charity and make a difference this year! 🌟✨ How It Works:1️⃣ Explore exciting events and find your perfect challenge on our website here: buff.ly/3K54NNH2️⃣ Register online—PTENUKI will help cover part of the fee! 🙌3️⃣ Get all event details via email.4️⃣ Set up your Just Giving page with PTENUKI's support.5️⃣ Start raising funds to support a great cause! 💖6️⃣ Receive your PTENUKI charity T-shirt.7️⃣ Join the event, challenge yourself, and have fun! 🎉👉 Start the year strong with a new goal and help make a brighter future. ... See MoreSee Less

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PTEN UK & Ireland Patient Group

4 weeks ago

PTEN UK & Ireland Patient Group
🎄✨ Season's Greetings from PTENUKI! ✨🎄As we wrap up another incredible year, we want to take a moment to wish our amazing community a very Merry Christmas and a Happy New Year! 🌟Your support and involvement mean the world to us, and we’re so excited to continue working together to make a difference in 2025 and beyond. 💙To help us better serve you in the new year, we’d love your feedback! Please take a moment to fill out our quick survey here: buff.ly/3BR5MzRTogether, we can keep building a stronger, more supportive community. Here's to a Merry Christmas and a fantastic year ahead! 🎁🎉 ... See MoreSee Less

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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.