PATIENT DAY
We are excited to announce our next face-to-face meet up on
Saturday 2nd July 2022 in Oxford!
Register here…
PATIENT
REGISTRY
A new Patient Registry has been created by Cambridge University and the PTEN Research Foundation. Read more about how it will help the lives of PTEN patients and sign up here…
Sign UpBUDDy Scheme
& LOCAL Meet UPS
We’ve just launched our new buddy support scheme and local meet-up groups, click below to find out more…
Buddy Scheme Meet UpsPTENUKI VIDEO
Find out more about PTENUKI and what we’re doing to help people affected by PHTS.
WatchParticipants wanted for an online survey
Behavioural, developmental and psychological characteristics in
children with germline PTEN mutations: A carer report study