About PHTS

PTEN Hamartoma Tumour Syndrome (PHTS, often shortened to PTEN) is a rare genetic condition. It is thought to affect around 200-300 people in the UK, ….
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Want to get involved and see what’s it all about or just have someone to talk to if you have been affected by any of the topics covered here….
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PTEN UK & Ireland Patient Group

1 day ago

PTEN UK & Ireland Patient Group
Knowledge is power! This #jeansforgenes week we heard from Victoria and Jason about what they learned going through their son's genetic diagnosis. Whilst the medical professionals and researchers have the incredible medical knowledge it is you (and your family/carers) that knows the most about your own journey and you should feel confident to ask the right questions and seek the right professionals for your needs.#TeamDenim #makeadifference ... See MoreSee Less

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PTEN UK & Ireland Patient Group

5 days ago

PTEN UK & Ireland Patient Group
This #JeansForGenes week we wanted to share some practical advice from people in our #pten #RareDisease community about dealing and living with a #genetic diagnosis. You can hear from Mark here: #TeamDenim #makeadifference ... See MoreSee Less

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PTEN UK & Ireland Patient Group

5 days ago

PTEN UK & Ireland Patient Group
We are delighted with the feedback we have been getting from people already signed up for our RareMinds counseling service. Don't forget to check it out: buff.ly/3rEZ3DO ... See MoreSee Less

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