Cover for PTEN UK & Ireland Patient Group
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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

🎁✨ It’s Tonight! ✨🎁The PTENUKI Festive 2024 Roundup is finally here! Join us for an evening filled with reflection, feedback, and festive cheer as we wrap up the year together.📅 When? Tonight, Tuesday, 17 December⏰ What time? 19:00–20:00💻 Where? Online🧣 Put on your coziest festive jumper, grab a glass of mulled wine 🍷, and let’s chat about what PTENUKI has done this year and your hopes for 2025.👉 There’s still time to register: buff.ly/3ZnwjMW We’d love to see you there! Let’s make it a night to remember. 🎅 ... See MoreSee Less
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🎅🎄 Only 5 Days to Go! 🎄🎅Get ready for the PTENUKI Festive 2024 Roundup happening this Tuesday! Join us for a cozy evening of sharing, feedback, and festive fun as we celebrate 2024 and plan for an even better 2025.📅 Date: Tuesday, 17 December⏰ Time: 19:00–20:00💻 Location: OnlineWe’ll chat about:✅ What’s been helpful in 2024✅ The services you’ve accessed✅ Your ideas for how PTENUKI can support you in 2025🧣 Don’t forget your festive jumper! Mulled wine is optional but encouraged. 🍷👉 Sign up here: buff.ly/3ZnwjMW We can’t wait to see you there! #PTENUKI ... See MoreSee Less
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🎄✨ Join Us for the PTENUKI Festive 2024 Roundup! ✨🎄Celebrate the season with a relaxed, festive chat about all things PTENUKI. Let’s reflect on 2024, hear your feedback, and talk about what you’d like to see in 2025.📅 When? Tuesday, 17 December⏰ Time? 19:00–20:00💻 Where? Online🎅 Festive jumpers and mulled wine optional but highly encouraged! 🍷🧣👉 Sign up here: buff.ly/3ZnwjMW We’d love to see you there! 💬 #PTENUKI ... See MoreSee Less
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🎉 Save the Date: PTEN UK & Ireland Patient Day 2025! 🎉We’re so excited to announce that our Patient Day is back! Mark your calendars for Sunday, 29th June 2025, and join us for an inspiring, informative, and community-focused day!📍 Where: Sense TouchBase Pears, Bristol Road, Selly Oak, B29 6NA🕙 When: 10:00 AM - 4:00 PM🍽️ Details: Refreshments and lunch included – because connecting over food makes everything better!🚗 Getting There: Just a 2-minute walk from Selly Oak station + free onsite parking!✨ Travel Bursary Available: Need help getting to the venue? A travel bursary is available for patients and families. Please contact Kelly for more details.This is a FREE event, but we kindly ask you to register your attendance here 👉 buff.ly/4fPmXR4 ✨ Whether you’re a PTEN patient, caregiver, or supporter, this is your chance to connect, learn, and grow with our incredible community.💻 Visit the venue here to learn more: buff.ly/3ViU9s3 👀 Stay tuned! We’ll be sharing more details about the event in the new year – exciting plans are in the works!Let’s make this day unforgettable! Can’t wait to see you there! ❤️ ... See MoreSee Less
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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.