NORD Member

PTENUKI is a member of the National Organization for Rare Disorders (NORD) network. 

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PTEN UK & Ireland Patient Group

PTEN UK & Ireland Patient Group

PTENUKI is a patient group which aims to help and support patients, carers, families affected by PTEN

PTEN UK & Ireland Patient Group

2 days ago

PTEN UK & Ireland Patient Group
🌟 Why Funding Rare Disease Charities Matters 🌟1 in 17 people will be affected by a rare disease in their lifetime—but many of these conditions like PTEN have little to no treatment available. Rare disease charities provide critical research, support, and hope to families facing the unknown.💙 Without funding, breakthroughs don’t happen.💙 Without awareness, families struggle alone.💙 Every donation, big or small, brings us closer to answers.Watch our video to see why your support means everything. Together, we can make a difference! 💪💜You can fundraise for us, check out our fundraising toolkit here: ptenuki.org/fundraising-ideas/ or you can donate through our PayPal: www.paypal.com/gb/fundraiser/charity/3616399 #PTENUKI ... See MoreSee Less

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Support the PTEN Patient group and work we do to help the UK & Ireland to understand and manage the condition.