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    • IMPROVING THE LIVES OF PTEN PATIENTS IN THE UK & IRELAND
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    WhatsApp Image 2025-02-27 at 19.13.28

    Published 20/03/2025 at 1200 × 1599 in Attending the Westminster Parliament Reception for Rare Disease Day
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    • About PHTS
      • About PHTS
      • FAQs
      • About PTENUKI
    • News
      • News & Events
      • Blogs
      • Podcasts
      • YouTube
      • Recruiting for the Board of Trustees of PTEN UK & Ireland Patient Group
    • Patients
      • New to PHTS
      • On Diagnosis
      • PTEN Overview Video
      • Screening Guidelines
      • PGD / PGT / IVF
    • Care and Support
      • PTEN UK & Ireland Counselling Service
      • Buddy Support Scheme
      • Navigating EHCP
      • Anti-Bullying
      • Autism
      • Useful Resources
    • Patient Registry
    • Professionals
    • Fundraising
      • Fundraising Ideas
      • Fundraising Materials
      • Run For Charity
      • Online fundraising and donations
    • Contact Us
    • Newsletter