News & Events

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One month to go until the next PTEN UK and Ireland Patient Day!

We are very excited that our 2023 PTEN Patient and family Day is just around the corner. Everyone is welcome! ...

PTEN UKI runs the London Landmarks Half marathon!

We want to say a HUGE thank you to our six runners who took part in the London Landmarks half ...

PTEN Wellbeing Clinics

EXCITING NEWS!!! In the PTEN community we all understand the impact that living with a PTEN mutation can sometimes have, ...

Calling all patients: New research study to Assist Future Research & Clinical Practice

This research seeks to test online questionnaires and measure of thinking skills relevant to people with PTEN Syndrome. You can ...

PTENUKI – new Chair of trustees

We are delighted to announce our new Chair of trustees, Jack Donnelly. Jack is from Coventry and approached the charity ...