News & Events
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Calling all patients: New research study to Assist Future Research & Clinical Practice
This research seeks to test online questionnaires and measure of thinking skills relevant to people with PTEN Syndrome. You can ...
PTENUKI – new Chair of trustees
We are delighted to announce our new Chair of trustees, Jack Donnelly. Jack is from Coventry and approached the charity ...
March Power Hour – Drug Repurposing for Rare Disease
PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection ...
February Power Hour – The PTEN Patient Registry
PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection ...
Our Hopes and Dreams for 2023…
We hope you had a wonderful festive break! The new year is now in full swing so we wanted to start ...
