News & Events

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PTENUKI – new Chair of trustees

We are delighted to announce our new Chair of trustees, Jack Donnelly. Jack is from Coventry and approached the charity ...
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March Power Hour – Drug Repurposing for Rare Disease

PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection ...
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February Power Hour – The PTEN Patient Registry

PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection ...
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Our Hopes and Dreams for 2023…

We hope you had a wonderful festive break! The new year is now in full swing so we wanted to start ...
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PTEN UK & Ireland Patient day Summary

Summary of the day For the first time since 2019, over 100 people in the PTENUKI community joined together in ...
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