Related Podcasts

Medics 4 Rare podcast

Each week Medics4Rare brings you interviews with people from across the rare disease and medical world, looking at different experiences and perspectives while providing pragmatic tips and advice for healthcare professionals. Please click on the link to hear Kelly, our Charity Manager, speak about her experience of bringing up a child with PTEN.

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Rareminds podcast

The Rareminds podcast talks about all sorts of issues surrounding rare disease and mental health. Click here to listen to Kelly, the Charity Manager, speak about learning to self care as a parent carer of a child with PTEN.

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