EXCITING NEWS!!!
In the PTEN community we all understand the impact that living with a PTEN mutation can sometimes have, both physically and mentally. Therefore, PTENUKI are pleased to launch the *PTENUKI Wellbeing clinics* in collaboration with Rareminds.
These wellbeing clinics will be monthly, online sessions available to all patients, parents, carers and family members affected by a PTEN gene alteration and will cover a range of topics including:
17 th May – An introduction to Rareminds and the wellbeing webinars
28th June – Living well with PTEN
18th July – Dealing with a PTEN diagnosis
20th Sept – Talking to your child about their PTEN diagnosis
18th Oct – Managing scancertainty (uncertainty)
TO BOOK YOUR SPOT ON THE FIRST WELLBEING CLINIC PLEASE CLICK HERE.
We really hope these sessions will give our community the tools and advice to help navigate their PTEN journey. To sign up for the first webinar please click on the link above.
