News & Events

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PTENUKI Patient day 2025

We are excited to announce our 6th PTEN Patient Day! This annual event brings together PTEN patients and families for ...

Pete Welch Announced as New Chairman of PTENUKI

We are thrilled to announce Pete Welch as the new Chairman of PTENUKI (PTEN UK & Ireland). With over 40 ...

Pipgen Art Project: A Fusion of Science and Creativity

We are excited to introduce you to the Pipgen Art Project, an extraordinary collaboration between science and art! Over the ...

Unleash Your Creativity: Join Our PTEN Awareness Day Art and Photo Competition!

As PTEN Awareness Day approaches next month (October 23rd), we are thrilled to announce our inaugural art and photo competition! ...

PTENUKI Cost of living grant appeal now open!

CALLING ALL FAMILIES TOUCHED BY PTEN IN THE UK AND IRELAND! This is for you! The PTEN UK and Ireland ...