News & Events
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Together in Strength: Highlights from the PTEN UK & Ireland Patient Day 2025
On Sunday 29th June 2025, our PTEN UK & Ireland community gathered in Birmingham for a day filled with learning, ...
Attending the Westminster Parliament Reception for Rare Disease Day
February 27th marked a memorable and impactful day at the Westminster Parliament Reception for Rare Disease Day, which was graciously ...
Join Our PPIE Initiative: Have Your Say in Improving PTEN care!
At PTENUKI, we believe that patients and carers should have a voice in shaping the future of healthcare. That’s why ...
PTENUKI Hosts Virtual Brush Party for Rare Disease Day
Date: Saturday, February 22, 2025 In celebration of Rare Disease Day, PTENUKI is excited to announce a virtual Brush Party ...
Book Review for Positively Rare
Positively Rare is a groundbreaking collection that goes beyond the medical aspects of rare diseases. It’s a celebration of the ...
