With PHTS being such a rare disease and there being only a small amount of data available currently, there are differences in opinion on the accuracy of reported cancer risks for PHTS patients.
If you are worried, please read our New to PHTS page, and also make sure you seek professional medical advice if required. Contact your GP and ask for a referral to a relevant specialist (e.g. Genetics Department, Counsellor, Oncologist) if needed. You can ask for as many referrals as you feel you need, at any time.