What do I do if I am newly diagnosed with PHTS?

If you are newly diagnosed with PHTS, we’d recommend checking out the following resources on our website –

– the New to PHTS page: http://ptenuki.org/patients/new-to-phts/,

– the On Diagnosis page: http://ptenuki.org/patients/on-diagnosis/, and

– the PTEN Overview Video by Dr Katherine Lachlan: https://ptenuki.org/pten-overview-video/

We would also recommend joining our private Facebook group which is where most people chat and support each other:


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