PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN. Now with a network of over 200 members, a significant proportion of the estimated 300 PTEN patients in the UK, PTENUKI is proud to announce its new Buddy Scheme. The Buddy Scheme will match up […]
Category Archives: News
07
Aug
Aug
On behalf of the charity I am delighted to attach to our Summer Newsletter with details of all our updates as well as a link to sign up to our next patient day! – Ellie We’re hoping to be able to do a newsletter every 6 months which will contain a whole range of useful […]
09
Aug
Aug
We’re delighted to have launched our new website for patients and families affected by PTEN / PHTS. It’s a fairly minimal launch to start with which is intentional, we would rather get smaller amounts of information published more quickly than hold anything back. We have included some introductory information on what the patient group is aiming to […]
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