Author Archives: Ian Stock

Patient Day 2019 – Registrations Open

Registration is now open for the next PTENUKI Patient Day. All welcome, register now!! Saturday 16th November 2019 from 10am to 5pm at Heron Tower, 29th Floor, 110 Bishopsgate, London, EC2N 4AY The event will be a great chance for meeting and talking with other people affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden’s […]

Patient Group PTENUKI reflects on achievements on its third rare disease day

PTENUKI: making connections First established in 2016, PTENUKI is making great strides to help patients and carers affected by PTEN. Now with a network of over 200 members, a significant proportion of the estimated 300 PTEN patients in the UK, PTENUKI is proud to announce its new Buddy Scheme. The Buddy Scheme will match up […]

Website Launch – Nov 2017

We’re delighted to have launched our new website for patients and families affected by PTEN / PHTS. It’s a fairly minimal launch to start with which is intentional, we would rather get smaller amounts of information published more quickly than hold anything back. We have included some introductory information on what the patient group is aiming to […]