We’re delighted to have launched our new website for patients and families affected by PTEN / PHTS. It’s a fairly minimal launch to start with which is intentional, we would rather get smaller amounts of information published more quickly than hold anything back.
We have included some introductory information on what the patient group is aiming to do, what PHTS is, and where you can find further resources and support. We hope you find it useful.
It’s early days yet, but we are planning on adding much more content covering a wide range of topics and perspectives, and if you would like to get involved or have some feedback for us, please get in contact.