One month to go until the next PTEN UK and Ireland Patient Day!

We are very excited that our 2023 PTEN Patient and family Day is just around the corner. Everyone is welcome!
Date: 24th June 2023
Time: 10:30am – 3:30pm
Venue: Tubney Warren Barn, Oxford, PharmaGenesis, Tubney, OX13 5QJ
The day promises to be full of fun with children’s entertainment from Captain Fantastic! . We also have a delicious summer BBQ from All Events. 
We can’t wait to see you all there! We will be giving a charity update; including introducing our new Chairman, talking about all of the fundraising efforts and grants that we have successfully been awarded, giving a PTEN registry update and introducing you to our NEW dedicated PTEN counsellors; plus much more!
To register for the event please click here. Places are free but limited so please do sign up as soon as possible!
If you would like to apply for a travel grant to help with the cost of attending the event, then please do fill in this form. Funds are limited and on a first come, first serve basis. However, we do not want funds to be a reason why a family can not attend, so please do apply and we will help where we can.
We can not wait to see you all there!
Want to know what usually happens at our Patient Days? You can watch the summary here:
YouTube player