Charlie told his story at the 2018 PTEN Patient Day. Charlie was diagnosed in 1992, at the time he had bad asthma. Charlie’s parents sent him to a Special Needs school. Charlie had multiple hospital visits to check out lots of lumps. Throughout Charlie was determined to stay positive, despite being bullied because of his […]
Category Archives: Patient day
14
Jan
Jan
At our Patient Day on 24th Nov 2018, Yvonne kindly told her inspiring and insightful PTEN story… Hello everyone, it’s a pleasure to be here today and to share our patient story within you all. My name is Yvonne and if you can’t tell already from the strange accent, I’ve travelled down from Glasgow in […]
18
Dec
Dec
The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in a […]
07
Aug
Aug
Yes folks, we are organising another patient day for the UK and Ireland! All welcome, register now!! Saturday 24th November 2018 from 10am to 5pm at Heron Tower, 29th Floor, 110 Bishopsgate, London, EC2N 4AY The event will be a great chance for meeting and talking with other people affected by PTEN genetic alterations, PTEN Hamartoma Tumour […]
08
Feb
Feb
The third national PTEN / PHTS patient day held on 11th November 2017 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in […]
09
Aug
Aug
After the success of our Patient Day last year in London, we are organising another one! All welcome, register now. Saturday 11th November 2017 from 10am to 5pm at Heron Tower, 29th Floor, 110 Bishopsgate, London, EC2N 4AY The event will be an informal day aimed towards meeting and talking with other people affected by PTEN genetic […]