PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection of webinars to inform you on your PTEN journey. There will be a different specialist each month.
This month we are speaking to Professor Marc Tischkowitz and Dr Katherine Lachlan who helped set up the registry. In April 2019 Cambridge University secured funding from the PTEN Research Foundation to create the UK’s first PTEN patient registry alongside the University of Edinburgh and University Hospitals Southampton. By collecting clinical data the PHTS registry aims to;
- Improve understanding of PHTS
- Improve patient outcomes, treatment and symptom management for PHTS
- Develop multidisciplinary approaches to predict PHTS complications for people
- Provide evidence to support treatment guidelines
This is your opportunity to hear all about the registry, ask any questions you may have and decide if you would like to join (if you have not done so already). There is no obligation to join the registry if you attend the event.
Click here now to get your tickets for the event.