PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection of webinars to inform you on your PTEN journey. There will be a different specialist each month. This month we will be speaking with Paul Elvin (PTEN Research) and Priyanka Tibarewal (UCL and PTEN-UKI), about […]
Category Archives: Events
29
Jan
Jan
PTEN UK and Ireland patient group have joined forces with a range of PTEN specialists to bring you a collection of webinars to inform you on your PTEN journey. There will be a different specialist each month. This month we are speaking to Professor Marc Tischkowitz and Dr Katherine Lachlan who helped set up the […]
27
Feb
Feb
** UPDATE 19th May 2022 ** We have been blown away by the response to our upcoming Patient day If you missed the opportunity to sign up please email kelly@ptenuki to get your name on the waiting list. Please also email Kelly if you previously registered and can no longer make it. We are working [...]
14
Jul
Jul
Registration is now open for the next PTENUKI Patient Day. All welcome, register now!! Saturday 16th November 2019 from 10am to 5pm at Heron Tower, 29th Floor, 110 Bishopsgate, London, EC2N 4AY The event will be a great chance for meeting and talking with other people affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden’s […]
08
Jul
Jul
The South West region support group is proud to announce it’s first “meet and greet/ planning” session. When? SATURDAY 7th SEPTEMBER 2019 Time? Between 11am – 2pm Where? St Marks Church (upstairs lounge), Archers Road , Southampton, SO15 2LU – a 12 min walk from the main train station. Please RSVP to zoe@ptenuki.org asap to let […]
18
Dec
Dec
The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in a […]
08
Feb
Feb
The third national PTEN / PHTS patient day held on 11th November 2017 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in […]