** UPDATE 19th May 2022 **
We are excited to announce our next face-to-face meet up for 2022!
Since starting the charity in 2017 we have met up once a year, to come together as a community to discuss the latest in research, medical guidelines and to support each other.
This will be our first meet up since the pandemic and we can not wait to all be in the same room once more. This conference is a great way to meet other people in the PTEN community, be it parents of children with PTEN, other adult PTEN patients, doctors who specialise in PTEN or the researchers who are using their world of academia to better understand our rare community and enhance the services and therapies available to us.
If you are newly diagnosed or have never been to one of our face to face meetings, then we would love to meet you!