Category Archives: Blog

PTENUKI visits Rare Fest

It is said over 3.5million people in the UK have over 7,000 rare diseases, 85% do not have a treatment for their condition. The Cambridge Rare Disease Network works to build a community to address the unmet needs of these people living with rare conditions. This month saw their Annual Rare Fest, which is a […]

First International PTEN Symposium

Our Trustee of Fundraising Kelly tells us about her recent trip to the US to represent PTENUKI at the PTEN Hamartoma Tumor Syndrome Foundation symposium   I had the honour of representing PTENUKI at the first international symposium held in Alabama in March 2018. As a parent of a PTEN patient as well as a founding […]