We are very excited that our 2023 PTEN Patient and family Day is just around the corner. Everyone is welcome! Date: 24th June 2023 Time: 10:30am – 3:30pm Venue: Tubney Warren Barn, Oxford, PharmaGenesis, Tubney, OX13 5QJ The day promises to be full of fun with children’s entertainment from Captain Fantastic! . We also have a delicious summer BBQ from All Events. […]
Category Archives: Patient day
14
Jul
Jul
Registration is now open for the next PTENUKI Patient Day. All welcome, register now!! Saturday 16th November 2019 from 10am to 5pm at Heron Tower, 29th Floor, 110 Bishopsgate, London, EC2N 4AY The event will be a great chance for meeting and talking with other people affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden’s […]
14
Jan
Jan
At our Patient Day on 24th Nov 2018, Yvonne kindly told her inspiring and insightful PTEN story… Hello everyone, it’s a pleasure to be here today and to share our patient story within you all. My name is Yvonne and if you can’t tell already from the strange accent, I’ve travelled down from Glasgow in […]
18
Dec
Dec
The fourth national PTEN / PHTS patient day held on 24th November 2018 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in a […]
08
Feb
Feb
The third national PTEN / PHTS patient day held on 11th November 2017 was attended by over 80 people. Once again Salesforce kindly provided the venue and staff to host the day at Heron Tower in London, providing a fantastic opportunity for people to make new friends, learn more about PHTS, and take part in […]